2019 Sickle Cell Disease Day write up by someone involved

#By Someone involved#............ Over 300,000 babies are born with the sickle cell disease every year from 821.917 births per day. Sickle cell disease still remains one on the most prevalent genetic disease on the world. Sickle Cell Disease Can be totally prevented based on our actions, Sickle Cell Crisis can be controlled to the minimum based on our actions, it's not what a single person can't do, all these can be done collectively. The question that arises now is how can you and I play our part in helping reduce the number of children born with SCD every year. Well it is quite simple just a simple medical test and a simple sacrifice is all that is needed. A geneotype check which can be done in any standard hospital or a good diagnostic centre near you. Then in case of a mismatch make the best decision not just for yourself but for your children unborn. Still you might ask what if I already have a child with SCD what can I do? Simply be the best parent you can be to that child. Always be there for him/ her, help him understand that he is different from others, that unlike others he has limits to what and what he or she can do, and the need to respect those limits. This might be the hardest part, but with love and care as well as time he or she will understand and take it to heart. Then please take your child to see a heamatologist so as to begin to access adequate care. To all who have SCD clients as friends you also have a role to play to assist this ones, JUST BE THERE, But how ? Assist when necessary, help update them with assignments they might have missed, help assist where they may require help. But you might ask how do I know, one thing is just to be on the look out. To all SCD patients remember you have limits and please do respect those limits they are part of what makes you stand out. Understand and Identify your responsibilities to yourself and uphold them. Sickle cell doesn’t stop you from achieving your dreams but with its limits it gives you a reason to aspire to be different, to be a goal archiever HAPPY SICKLE CELL AWARENESS DAY….. Make someone aware of what Sickle Cell Disease is today.

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